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Empowering Rare Disease Patients Through Personalized Peer-to-Peer Mentorship

PatientPartner uniquely supports patients facing rare diseases, accelerating diagnoses, enhancing treatment adherence, and providing authentic patient insights at scale.
See the platform in action
30,000
Patient Members
500+
Patient Mentors
150+
Disease states covered
<1Day
Avg. connection made

Rare Diseases, Real Challenges

Managing rare diseases like Lupus, Muscular Dystrophy, and Cystic Fibrosis demands specialized patient engagement. These patients require more than marketing campaigns and patient support programs, they deserve personalized engagement.

+50% Faster Diagnosis
Diagnosis confirmed 50% faster with AI support.
Carla D.
Rheumatoid Arthritis
+35% Higher Adherence
Therapy followed 35% more with reminders.
Emma D.
Cystic Fibrosis
+45% Quicker Care Plan
Reached dose plan 55% quicker with mentor.
Liam H.
Muscular Dystrophy
25% More Feedback
Got 25% more real-time insights.
Sophia K.
Type 1 Diabetes
+60% Faster Detection
Detected early signs 60% faster with AI.
Kate M.
Lupus

Common Challenges in Rare Disease Care

  • Patient Isolation

Rare disease patients often lack accessible, relatable support, increasing anxiety and treatment hesitancy.

  • Low Treatment Adoption/Adherence

Complex therapies and challenging side effects often result in poor long-term adherence, negatively impacting clinical outcomes.

  • Limited Real-World Data

Scarcity of patient insights hinders effective patient engagement and treatment optimization.

Ava M.
Muscular Dystrophy
Patient Sentiment
Feeling isolated
Peer Support
No Options Available
Time to Diagnosis
3.5 years
Time to Treatment
2.0 years

PatientPartner's Proven Solutions

  • Instant Peer-to-Peer Mentorship

Patients are connected in real-time with carefully matched mentors who have navigated the same rare disease journey, creating authentic connections that ease isolation and build confidence.

  • Measurable Adherence Improvement

Patients engaged through PatientPartner show a 29% improvement in adherence, staying on treatment approximately 133 days longer, resulting in better health outcomes and reduced costs.

  • Unparalleled Real-World Patient Insights

Gain deep, actionable insights directly from patient-mentor interactions to optimize treatment plans, patient communication, and support programs.

Ava M.
Muscular Dystrophy
Patient Sentiment
Feeling hopeful
Peer Support
Matched Mentor
Time to Diagnosis
2.4 years
Time to Treatment
1.2 years

How It Works

1. Patient Matching
Patients are instantly connected through our patented, real-time mentorship matching platform, pairing each patient with a mentor experienced with their exact disease state.
2. Personalized Support
Utilizing advanced sentiment analytics, PatientPartner ensures every patient-mentor interaction is tailored for maximum impact, addressing unique emotional and informational needs.
3. Actionable Outcomes
Experience measurable patient activation — 85% of patients progress confidently to their next treatment milestone, significantly above industry standards.

Compliant by Design

PatientPartner meets and exceeds regulatory standards, including HIPAA, SOC 2, and ISO 27001, providing integrated, real-time compliance tracking to safeguard patient information and mitigate risk.
AICPA SOC Compliant
GDPR Compliant
ISO 27001 Compliant
HIPAA Compliant

Ready to Transform Your Rare Disease Patient Engagement?

Book your personalized demo and see exactly how PatientPartner drives measurable results for rare disease treatments.
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Drive Results with 2025 Direct to Patient Marketing Trends Analysis Report

Download the 2025 Direct to Patient Marketing Trends Analysis Report to find out exactly how pharma & med-tech leaders are modernizing their approach to achieve higher patient adoption and sustained treatment adherence.
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